Author Topic: Esther's Journey  (Read 6187 times)

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Offline Esther

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Re: Esther's Journey
« Reply #30 on: May 18, 2012, 08:51:07 AM »
Just got a very positive report from the infectious disease doctor. She seemed very happy with my improvement. Love this lady as she is so willing and able to explain this horrid stuff in words that we understand. The "port hole" no longer is being packed and it's is totally amazing how much it is filled in and pulling together by itself. Only 1 more week of the antibiotic infused into the PICC line and that is done. Blood thinner is almost done too. Oxygen equipment goes away this afternoon. I haven't used it in about 10 days anyway. Evidently the lung's ability to breathe and do whatever lungs do is impaired by the blood clots. That is why I was given the oxygen.  But they are expected to dissipate between 3=6 months by themselves.

I am so grateful to my church friends, friends, family and neighbors for the massive support I have received. The ladies from church have been bringing 4 meals a week now for 4 weeks, and some from family and neighbors. I've received so many cards, hugs, comments here and on Facebook, telling me of the prayers, care and concern folks have for me. I'm just convinced all that has had a very positive hand in my healing. Thanks so much.

Offline Indiana Karen

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Re: Esther's Journey
« Reply #31 on: May 18, 2012, 07:28:13 PM »
Wonderful news Esther.  o(:-)

Offline Esther

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Re: Esther's Journey
« Reply #32 on: June 20, 2012, 06:08:18 AM »
Chemo #5 is this coming Tuesday with the last one due on July 17. Can't wait to get them over. This jerking me up and down is getting old. There is about a week of feeling and sleeping almost normal and then a new Chemo and two weeks of "side affects". I have been fortunate though because what I have experienced has not been as bad as some I've heard about.

I have been taking more vitamins than normal, probiotics, and Immodium. If I am feeling draggy, I take a nap. Some days I hit the couch already at noon. But that is an easy fix, huh? All the medical people involved in this journey with me are saying I'm doing very well, mentally and physically.

Offline 2vetts

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Re: Esther's Journey
« Reply #33 on: June 20, 2012, 09:58:25 AM »
this DOES NOT require any comments . madam you have my respect as i don't know how anyone can cope with medical problems . doc told me [and no one but my wife knows this as it would be of no benefit to anyone ] ''you have ________ and you don't want to die from it'' . i told him '' i assure you if you prove it i won't die from it'' . he has not proven it but i'm beginning to believe him . i'm more fortunate than 99+% of the people in the world and still depressed beyond my ability to describe it . i have shelter , clean water , freedom , i can walk my neighborhood safely , and i do appreciate this and realize my good fortune . can't tell you folks all my depressing thoughts as this is wifes computer and you have no need to listen to them . oh well , nothing like self pity to make a person feel worse . i'm glad your state of mind is good and your health is probably improving , good luck . . .peace...........and no comments please .

Offline Mikey

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Re: Esther's Journey
« Reply #34 on: June 20, 2012, 10:07:43 AM »
I trust Pete is driving you hither and thither.  A few days ago there was a local news story about a missing judge.  She was en route to court and never arrived was later found at some restaurant.  Seems she is going through chemo and had been warned that the drug may cause her to become disoriented at times. 
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Offline Esther

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Re: Esther's Journey
« Reply #35 on: June 20, 2012, 06:40:57 PM »
I have had no disorientation, Mikey. Different people have different Cancers so require different drugs. I think I drove myself to get the follow up shot once alone. Otherwise we hardly go anywhere alone. Not because of the treatment but it just works out that way. I have heard of "Chemo Brain" and when I can't find something or forget something, I blame it on that.

2 Vetts, as with you, I don't know what to say.  My husband struggles with depression but takes Celexa and it has helped so much. He knows he didn't wish this disorder on himself and is unable to make it stop by himself. He feels so much better and is so much easier to live with since he started meds about 5 years ago. A while ago, he decided to not take it anymore and I didn't know it. We were getting ready for a bunch of company and Pete was setting the dining room table and I was telling him what to do. He became so combative and ornery. I had noticed it earlier in the week but didn't say anything. But that day I asked him, "Have you stopped taking your meds?" He looked up and said he had. I told him that I could tell and had noticed it earlier in the week. He decided he didn't like himself off the meds and began taking it again. He realized that if he was making life difficult for me and it could be controlled with a simple pill, he would take it.

Just about every illness out there has a "history" of behavior and a history of research and records of treatment. As different things are tried over the years, they have determined what works best or what doesn't work. They develop a "protocol" of treatment and go with what historically works best. Again different people may have a different response to the treatment. I have never heard of a guarantee issued by the medical people but they do know what typically works best.

For instance, when it was determined that my infection was under the port and it was MRSA, they knew what kinds of side affects accompany it. They immediately performed a cat scan on the liver because they knew that often it causes problems there. Also that MRSA critter likes to light on the heart valves and cause problems there so I wore a heart monitor all the while in the hospital. A cold sore started on my lip and the infectious disease doctor ordered cold sore medicine and I'm still taking it. He said that if my body typically made them when the immune system was down then certainly during Chemo I would probably have a lot of them. He said also that they knew that the antibiotic given for 6 weeks had history of killing the MRSA and keeping it down, when they tried it for 4 weeks, they had some reoccurance. So now protocol says to do it for 6 weeks. Then, when my oxygen levels werer low, they began to suspect that because of the cancer I had developed blood clots. Sure enough there they were. So now I'm on a blood thinner. Again, I was NEVER given a guarantee that any of the treatments would work. In fact, that is part of the paperwork I signed again and again, basically I was signing that I understood that if something went wrong, I couldn't blame the medical staff.

 

Offline Vickie

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Re: Esther's Journey
« Reply #36 on: June 21, 2012, 09:25:17 AM »
Here is to a speedy recovery. Wishing you the best.

Offline Indiana Karen

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Re: Esther's Journey
« Reply #37 on: June 23, 2012, 05:36:14 AM »
I will be so glad when you get this all behind you Esther.

Thanks for the update, I had been wondering about you.

Offline Esther

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Re: Esther's Journey
« Reply #38 on: July 21, 2012, 07:08:37 AM »
Today was the meeting with the oncology radiation specialist. He reccommented 5 days a week of radiation for 6.5 weeks. There may be some side effects, such as the radiated skin being sore and possibly blistered and I'll be fatigued. So what's new? I'm getting used to the fatigue. There are evidently two measurements of the cancer. One has to do with the size and the other to do with how aggressive or "angry" it is. Mine was stage 1 as it was tiny but must have been pretty upset as given a level of 3. Anyway, they radiate the whole breast, "just in case." My appointments will begin early August. He said that the worst part of the treatment is the drive time. LOL. I also will have an infusion (IV eyevee, not 4) of Herceptin every three weeks for a year and have to take a pill every day for a year.

Even though the side affects have gotten progressively worse, I am happy to know I just have about 2 weeks to endure and the last Chemo was last Tuesday. The oncologist and the Chemo nurses have been very encouraging and told me I am enduring this very well.

Offline SueSTx

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Re: Esther's Journey
« Reply #39 on: July 21, 2012, 09:21:31 AM »
Good news

and continue praying

Offline Esther

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Re: Esther's Journey
« Reply #40 on: August 11, 2012, 04:41:15 PM »
Chemo is done but there are still some lingering minor side effects. The first of 33 radiation treatments was last Monday. Like Mike said, it is a breeze. From what I understand, I won't notice any side effects for a couple of weeks yet and then they won't be so bad as the Chemo ones. But I didn't experience very bad ones from the Chemo anyway.

There have been several test run periodically and they all have come back with good results.

Offline SueSTx

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Re: Esther's Journey
« Reply #41 on: August 11, 2012, 04:56:50 PM »
Good news and I'll continue with the prayers

Offline mascot

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Re: Esther's Journey
« Reply #42 on: August 11, 2012, 07:25:40 PM »
Nice to hear the good news.

I'm broke and can't afford to pay attention, so you might have to lend me an ear.

Offline Esther

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Re: Esther's Journey
« Reply #43 on: August 13, 2012, 06:11:41 AM »
Hi Mascot. Good to see you.

 

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