The doctor put a drainage tube in Braeden's kidney yesterday leading to an exterior bag. It is working fine. The blood pressure is down where it needs to be. He had an MRI to find out what is going on inside and that meant putting dye in him. So instead of letting the kidney sort the dye out, they did a session of dialysis rather than overworking the kidney. They will find out the results of the MRI today but she said she wasn't very hopeful.
When we were on the phone about 10 last night, little guy was throwing up. Something about the blood circulation isn't working right and when he eats, the stomach can't digest the food so it throws it up. I could hear him talking and he sounded like a tired sick kid. HE was worrying about the port tube coming out. Imagine a 3 1/2 year old!!
We are going down in a few minutes as we have to be back home by 1 to meet the delivery truck. Stupid washer quit at one of the duplexes and the repairman said it wasn't worth paying for a service call. MERRY CHRISTMAS!!
At least we got down to the unemployment office and found out why Pete didn't get his first check. Got that straightened out. In one place they have him as Pete and another as Peter------nere the twain shall meet. Stupid. You'd think that they'd go by his social security number. So now we will get two. RAH. Gotta pay for the washer and a new window at another duplex.
We just spent about 2 hours in Braeden's room. He has the chest port, a dialysis tube out his side and the kidney drainage out his back. When we got there his cheeks were quite red and redness around his eyes. He greeted us happily though. Dawn and Kevin said that the doctor had just been there with the results of the MRI. Not good. The tumor is already fist sized. I don't know whose fist but still----- They might try chemo or radiation to shrink it or surgery. Evidently he can still have the MIBG even with the drainage tube but said that the tumor would have to be downsized, one way or another before the MIBG would be considered.
HE played catch with Grandpa and tried several times to make a basket but the basket was hanging from the top of the bathroom door and he just couldn't get the little ball up from the bed that high.
HE then began complaining of stomach pain so they tried to get him to take a Tylenol. He fought it like it was poison. Finally Kevin forced it between his teeth and then he accepted it and sucked on it. After a while he relaxed and was cheerful when he was visited by a little girl who had come to the hospital for "clinic", whatever that is. I think they go in to have their "counts" checked from time to time and that's why she was there. She must have some awful illness too.
He perked up and was talking about how he wants to be Super Bub and have super powers. He likes to watch Spider man videos. Ironic isn't it that even he knows to wish he had powers that he doesn't.
We stayed in his room while Dawn and Kevin went down for lunch. Owen was there and I put him to sleep.
That's all for now folks.
_________________
